New Resource for the Galactosemia Community Launches to Empower Families as They Navigate Lifelong Genetic Disease
ALBANY, N.Y., and LAKE FOREST, Ill., July 25, 2022 – The Galactosemia Foundation, a non-profit charitable organization that advocates for people with galactosemia and their families, and Jaguar Gene Therapy, a biotechnology company accelerating breakthroughs in gene therapy for patients suffering from severe genetic diseases, including those that affect sizeable patient populations, today announced the publication of Navigating Galactosemia Life Stages: A Handbook for the Galactosemia Community.